Google
Trusted Resources: News & Events
Latest announcements and gatherings
These Sisters With Sickle Cell Had Devastating, and Preventable, Strokes
Kyra, who has sickle cell, had suffered a devastating stroke — her second — a common complication of this inherited disease, which afflicts 100,000 Americans, most of them Black. She most likely would never have had the strokes if she had been given an annual screening test and treatment proven more than two decades earlier to prevent nine out of 10 strokes in children with the disease and recommended by the National Institutes of Health. But like countless other children with sickle cell, she was never screened.
This is a paradoxical moment for people who have this painful, deadly disease. For the first time, gene therapies that have advanced through clinical trials offer the real possibility of a cure.
+myBinderRelated Content
-
Men with sickle cell disease show significant concerns over safety while being treated for vaso-occlusive crises: pr...Background: We undertook a large multisi...
-
Benign Hematologic Disorders in Children, an Issue of Pediatric Clinics of North America, Volume 65-3This issue will provide a current update...
-
St. Louis Children’s HospitalThe St. Louis Children's Hospital Sickle...
-
Public Meeting on Patient-Focused Drug Development for Chronic PainMeeting Information: On July 9, 2018, F...
-
Hospital Playroom Transformed Into Romantic Restaurant For Parents Of Kids With Bone Marrow TransplantsIt was Valentine’s Day with a lot of h...
-
Daniel E. Bauer, MD, PhDDaniel E. Bauer is currently engaged as ...
-
Lakiea Bailey, PhDDr. Lakiea Bailey is a sickle cell disea...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Powered by
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.